Dementia is something that is usually associated with older people. However, children, teenagers and young
adults can experience dementia as a result of a number of rare diseases and conditions. Niemann-Pick Disease
Type C (NPC) is an example of one of these diseases, and one of its main symptoms is dementia. (Hinton et al, 2005)
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World Rare Disease Day 2012 is coming up on February 29th. Consider these staggering statistics. Each year, 139 BILLION U.S. dollars are invested in medical research — much of it from tax payers Each year, 800,000 papers are published in medical journals by scientists Each year on average, ONLY 21 new drugs are approved by […]
My life grows more surreal by the day. Four years ago, I was told that my eight year old identical twins have a fatal genetic cholesterol disease called Niemann Pick Type C (the “Childhood Alzheimer’s”) and they would likely not live to see their 10th birthday. Now I have learned from top virus scientists that […]
I wanted to post an update for everyone that comes to this site we have for the boys. I’ve taken a long time to “pull the trigger” in redesigning www.BriParDun.com because we had many people linked to our site but at the time wordpress didn’t have a solution to account for “.html” on the links (not one I at least knew of or could find). They’ve now have made that an option that allows us to preserve links on our site that other people have.
It is still a work in progress and the plans our to update that blog as the main point of communication with everyone that is so loving and caring for our family to receive updates. Make sure to sign up for email updates so you don’t have to keep coming to the site and checking manually!
So keep an “eye” out for new posts on that site!
Thanks again!
Mike
What is Niemann-Pick Type C? http://www.blog.bripardun.com/jump.php?m=Niemann-Pick
Me and Jennifer had a chance to get some away time from the lil dudes this weekend. I entered into a contest with Reltionships360 at the beginning of the week. I wasn’t quite for sure if it would pan out but I am very glad it did!
On Thursday I received the news that we had won! At first when I called Jennifer to tell her, she wasn’t too excited. Really the thought was who was going to watch the kids? Well we got that worked out!
We received an overnight stay by the Marriot, 4 hour limousine ride by Extreme Limousine, dinner at McCormick & Schmicks on the Plaza, flowers & chocolates from Kamps Flowers, and most importantly time alone!
All together we say thank you for everyone that made this happen and we are very thankful!
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