Brisan and Parker Stults – Fighting Niemann-Pick Type C – The Childhood Alzheimer's

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Dementia is something that is usually associated with older people. However, children, teenagers and young adults can experience dementia as a result of a number of rare diseases and conditions. Niemann-Pick Disease Type C (NPC) is an example of one of these diseases, and one of its main symptoms is dementia. (Hinton et al, 2005)

Meet Brisan & Parker

Bath Time

Put in Perspective

What is NP-C?

Dr. Marc Patterson on NP-C

More Information

Brisan & Parker's Website -BriParDun

Brisan & Parker's Blog

Niemann-Pick Children's Fund, Inc.

National Niemann Pick Disease Foundation

Ara Parseghian Medical Research Foundation

Hide and Seek Foundation

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My life grows more surreal by the day. Four years ago, I was told that my eight year old identical twins have a fatal genetic cholesterol disease called Niemann Pick Type C (the “Childhood Alzheimer’s”) and they would likely not live to see their 10th birthday. Now I have learned from top virus scientists that […]

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18Mar

Check out the new BriParDun.com site for Brisan and Parker Stults

Niemann-Pick Type C, Updates No Comments

I wanted to post an update for everyone that comes to this site we have for the boys. I’ve taken a long time to “pull the trigger” in redesigning www.BriParDun.com because we had many people linked to our site but at the time wordpress didn’t have a solution to account for “.html” on the links (not one I at least knew of or could find). They’ve now have made that an option that allows us to preserve links on our site that other people have.

It is still a work in progress and the plans our to update that blog as the main point of communication with everyone that is so loving and caring for our family to receive updates. Make sure to sign up for email updates so you don’t have to keep coming to the site and checking manually!

So keep an “eye” out for new posts on that site!

Thanks again!

Mike

What is Niemann-Pick Type C? http://www.blog.bripardun.com/jump.php?m=Niemann-Pick

Tags: BriParDun.com, Brisan Stults, Duncan Stults, Jennifer Stults, Michael G. Stults, Niemann-Pick Type C, NP-C, NPC, Parker, Parker Stults