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	<title>Brisan and Parker Stults - Fighting Niemann-Pick Type C - The Childhood Alzheimer&#039;s - Blog.BriParDun.com</title>
	<link>http://www.blog.bripardun.com</link>
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		<title>Valentines Day Weekend</title>
		<description><![CDATA[Me and Jennifer had a chance to get some away time from the lil dudes this weekend. I entered into a contest with Reltionships360 at the beginning of the week. I wasn&#8217;t quite for sure if it would pan out but I am very glad it did! 


On Thursday I received the news that we [...]]]></description>
		<link>http://www.blog.bripardun.com/2010/02/valentines-day-weekend/</link>
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		<title>Social Security Adds 38 New Medical Conditions that Qualify for Disability Help</title>
		<description><![CDATA[Social Security Adds 38 New Medical Conditions that  		Qualify for Disability Help


Adding new conditions, like early-onset Alzheimer’s   		disease, will speed benefits to thousands of disabled
Feb. 12, 2010 – The  latest move by the Social  		Security Administration, in an ongoing effort to speed up the decision   		process for consideration [...]]]></description>
		<link>http://www.blog.bripardun.com/2010/02/455/</link>
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		<title>Just an update</title>
		<description><![CDATA[Well the first almost eight weeks of the boys taking NAC are almost over. We head out to the NIH on Jan. 28-30th to review thus far. They get to have a six week washout period starting next week and we are very excited. After giving Brisan 40 ml three times a day and Parker [...]]]></description>
		<link>http://www.blog.bripardun.com/2010/01/just-an-update/</link>
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		<title>Pictures from Christmas 2009</title>
		<description><![CDATA[Here are pictures from some of our Christmas with Brisan, Parker, Duncan and the whole family! Enjoy!

  
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		<link>http://www.blog.bripardun.com/2009/12/pictures-from-christmas-2009/</link>
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		<title>NAC Drug Trial with Brisan and Parker</title>
		<description><![CDATA[
Three days was enough time for us to be in Bethesda, MD at the NIH! We were thankful that we didn&#8217;t have to spend all day Thursday &#38; Friday running around with our head cut off!  Last night we had an opportunity to eat dinner with friends from KC that moved to DC for work! [...]]]></description>
		<link>http://www.blog.bripardun.com/2009/12/nac-drug-trial-with-brisan-and-parker/</link>
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		<title>Heading to Bethesda, MD to start the NAC Trial for NPC</title>
		<description><![CDATA[Tomorrow morning we set out on a journey across the country to start a new drug trial they call the Biomarker Validation for Niemann-Pick Disease, type C: Safety and Efficacy of N-Acetyl Cysteine at the National Institute of Health in Bethesda, MD. This clinical trial will hopefully lay the groundwork for future therapeutic trials. You can [...]]]></description>
		<link>http://www.blog.bripardun.com/2009/12/heading-to-bethesda-md-to-start-the-nac-trial-for-npc/</link>
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		<title>Duncans favorite video</title>
		<description><![CDATA[Elmo had four ducks&#8230;.quack quack&#8230;.
He absolutely loves it! He gets a big grin on his face and sways his head back and forth. Little man has some rhythm!  Just wanted to share some fun stuff.

]]></description>
		<link>http://www.blog.bripardun.com/2009/11/duncans-favorite-video/</link>
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		<title>Crop &amp; Shop Fundraiser &#124; Benefit For Brisan and Parker Stults &#124; Saturday, November 21, 2009</title>
		<description><![CDATA[What is Niemann-Pick Type C? Here is something to put it into perspective. &#8220;Dementia is something usually associated with older people. However, children, teenagers and young adults can experience dementia as a result of a number of rare diseases and conditions. Niemann-Pick Disease Type C (NPC) is an example of one of these diseases, and [...]]]></description>
		<link>http://www.blog.bripardun.com/2009/11/crop-shop-fundraiser-benefit-for-brisan-and-parker-stults-saturday-november-21-2009/</link>
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		<title>Strength of family endures despite nearly insurmountable odds</title>
		<description><![CDATA[Strength of family endures despite nearly insurmountable odds
Two young brothers suffer from rare disease, sometimes called “Childhood Alzheimer’s”
By Christopher Fischer
The Pointe Staff
Published: Tuesday, October 6, 2009 10:04 AM CDT 
Enter their home, and you’ll see a young, middle class family that appears to be much like any other in Grain Valley. Three young, boisterous boys [...]]]></description>
		<link>http://www.blog.bripardun.com/2009/10/strength-of-family-endures-despite-nearly-insurmountable-odds/</link>
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		<title>Benefit for Brisan and Parker: Texas Hold&#8217;em Poker Tourney</title>
		<description><![CDATA[Parker Stults, age 3 and his brother Brisan Stults, who just turned 5 years old, were diagnosed in August/September 2008 with a rare genetic neurodegenerative disease called &#8220;Niemann Pick Type C Disease (NPC),&#8221; also known as &#8220;Childhood Alzheimer&#8217;s.&#8221; The outcome is fatal. www.bripardun.com
Friends of the Stults family are hosting a Texas Hold&#8217; Em Poker Tournament [...]]]></description>
		<link>http://www.blog.bripardun.com/2009/10/benefit-for-brisan-and-parker-texas-holdem-poker-tourney/</link>
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