Niemann-Pick Children’s Fund, Inc is a Missouri 501[c]3 Tax Exempt Non-Profit Corporation. It was created in honor of our two eldest sons; Brisan and Parker who are suffering from Niemann-Pick Type C disease (NPC) or “Childhood Alzheimer’s”.
Our mission is to support research through fundraising, promote awareness & education, support other NP-C families in proper fashion with the NP-C community, and share how solving one disease can help solve many others.
Your help is needed now to save the lives of our precious Brisan and Parker, and all the children affilicted with this. It will also provide gateways into other related disease including other cholesterol-metabolism disorders such as atheroscierosis and stroke, as well as adult onset Alzheimer’s.
Although medical research takes time, and funds are limited, research is making progress. In the future, the lives of these precious children may be saved. It can only happen through personal and corporate contributions towards NP-C research in pursuit of a treatment for this life-robbing disease.
If you would like to make a kind donation you have a couple of options. You can Donate to the NPCF for our non profit mission or you can give to Brisan and Parker to help with recurring medical costs, diapers, food, travel expenses for doctor visits( N.I.H., MAYO…), and basic living expenses.
Send Donation to:
Niemann-Pick Children’s Fund, Inc – P.O. Box 230 – Grain Valley, MO 64029Michael and Jennifer Stults c/o Brisan and Parker Stults – P.O. Box 230 – Grain Valley, MO 64029
Visit the Donate page on Brisan and Parker’s website:
http://www.bripardun.com/Donate.html
Donate through the Ara Parseghian Medical Research Foundation:
Make sure to indicate “in honor of” BriParDun Fund or Brisan and Parker Stults.
Ara Parseghian Medical Research Foundation
The goal of the Ara Parseghian Medical Research Foundation (APMRF) is to raise funds to find a treatment for Niemann-Pick Type C (NP-C) disease.
This funding supports an international research program:
- To expedite a treatment for NP-C disease
- To promote collaborative research efforts among the world’s leading experts in cholesterol metabolism, cell biology, neurobiology, genetics, pharmacology and other areas of science
- To study similar and further the cause of other neurodegenerative diseases as well as cholesterol storage disorders
The research program is directed by a Scientific Advisory Board (SAB) of internationally acclaimed scientists. Ninety percent of every dollar contributed to the Foundation is directed to medical research, with only ten percent supporting administrative costs.
Medical research is costly, but it’s our hope in saving the lives NP-C patients. The Parseghian Foundation is currently funding 25 labs around the world. Grants are awarded up to $100,000 per year.
For the thousands of children and young adults worldwide who are afflicted with NP-C and for the 60,000 children who have other neurodegenerative diseases, the APMRF’s goal means life. This research effort is a race against time.
A Goal for Life.
THANK YOU FOR ALL YOUR HELP AND SUPPORT! OUR FAMILY CAN NOT EXPRESS OUR GRATITUDE ENOUGH!
