Comments for Brisan and Parker Stults - Fighting Niemann-Pick Type C - The Childhood Alzheimer's - Blog.BriParDun.com

Comment on NAC Drug Trial with Brisan and Parker by Dad

Dad — Sun, 17 Jan 2010 08:12:46 +0000

Hey Chris. Yes he is chewing on everything. If is not his shirt then it is whatever is closest. He is always needing to play with his mouth or figit with something.

Comment on NAC Drug Trial with Brisan and Parker by Chris Hempel

Chris Hempel — Sun, 17 Jan 2010 03:10:39 +0000

I noticed that Brisan is chewing in the video on a rubber wrist band — Addi and Cassi are chewing like crazy. Does he do this a lot?

Comment on Pictures from Christmas 2009 by ma

ma — Fri, 08 Jan 2010 16:13:13 +0000

hey guys. can’t wait to see you tomorrow . happy bday duncan and parker! love you and hope you are having fun and staying warm. love MA

Comment on Heading to Bethesda, MD to start the NAC Trial for NPC by Darla Sartain

Darla Sartain — Wed, 02 Dec 2009 17:59:27 +0000

My prayers and thoughts go with your family as you travel and also with the treatments. Hoping these treatments lead to the cure for your children. God Bless.

Comment on Guestbook by ma

ma — Thu, 17 Sep 2009 15:14:46 +0000

hey boys,
I will be there friday night late to spend the night with you all. Maybe sat morning we can do something special. I love all three of you.
Love, MA

Comment on Happy 5th Birthday Brisan! by Cate Walsh Vockley

Cate Walsh Vockley — Fri, 28 Aug 2009 16:33:33 +0000

Way to go Brisan…I hope you had a terrific day!

Cate

Comment on Happy 5th Birthday Brisan! by Susan Green

Susan Green — Fri, 28 Aug 2009 08:15:04 +0000

Happy Birthday Brisan!!! Hope you have a very happy day!
Lots of Love
Susan, Jim and Roy

Comment on Guestbook by ma

ma — Mon, 20 Jul 2009 17:21:11 +0000

Brisan and Parker,
I am so glad that I get to spend time with you all. You both have been laughing more and I have fun with you. our whole church prayed for you both for God’s guidance and love. Know that people love you. I love you, also. Maybe momma will let us go to the zoo and see all the animals. Marty and Alex might be there. that sounds fun. will see you soon.

Love, MA

Comment on A mom’s quest: Saving her twin daughters’ lives by Dad

Dad — Fri, 03 Jul 2009 15:17:15 +0000

Dorene,

Thank you for writing! I know that a lot of research is taking place and we are glad that the foundation for research has been laid. Even though as parents we want to make it all happen now, which is a natural response to situations like ours or any situation that is life threatening, we must have faith that research doesn’t jump from point A to Point Z without the proper research. We see it happen all the time that we jump far ahead just to find ourselves peddling backwards to start over because of oversights. The Hempel Family along with other families have been instrumental in attempting to speed things up. At the end of the day all the research benefits families like ours who are dealing with this monster of a disease.

You can visit http://www.addiandcassi.com and go to the contact tab. This is their website which will allow you to reach out to them. Thank you for reaching out to us. The Hempel family is very special and those little angels are cuties!

Mike Stults

Comment on A mom’s quest: Saving her twin daughters’ lives by Dorene Witter

Dorene Witter — Fri, 03 Jul 2009 06:42:44 +0000

I don’t know why this thought comes to mind, but I am reminded of certain similarites between the condition in the movie “Lorenzo’s Oil” and Nieman Pick’s disease. I was so moved by the love and determination of these parents and their beautiful children. Have the parents explored similar treatment options (similar to Lorenzo’s Oil) for these girls? I don’t know how to reach the parents, and not sure this will turn up anything, but feel compelled to give them this information, as it may lead them down another path to explore. God bless!