Comments for Brisan and Parker Stults - Fighting Niemann-Pick Type C - The Childhood Alzheimer's - Blog.BriParDun.com

Comment on NPC Clinical Trial Opportunity by Michael G. Stults

Michael G. Stults — Thu, 25 Mar 2010 16:37:27 +0000

Gary, Thank you for posting a comment! With Niemann-Pick Type C we know the main issue is with intercelluar cholesterol. With that causes these trickle down effects which one of them is oxidative stress. NAC seems to be pretty safe and minimal side effects. We would like to conquer Mount Everest in one day but we know that we have to take it day by day.

Thank you for the great information!

Michael

Comment on NPC Clinical Trial Opportunity by Gary

Gary — Wed, 24 Mar 2010 05:23:27 +0000

My mother has picks – age about 65, showed first signs around age 50 but didn’t become seriously affected until about age 60. I noticed that she did very well when taking DHEA and I mentioned it to a Dr. at Mayo Clinic. He thought it might be helping reduce inflammation in the brain. We never discussed oxidative stress but if you google DHEA and Oxidative Stress, you will see reports that it reduces oxidative stress! I know that I have read somewhere that seizures may be the brain’s attempt to force release of and make available DHEA. We experimented with a lot of different supplements and drugs but we never seemed to slow down the progression. We blogged about everything we did. I have personally taken NAC and I have noticed it helps me remember my dreams when I wake up. I also take R-ALA and a vitamin C because ALA will actually oxidize if you don’t have enough vitamin C for it work with. The benefits of NAC are great.

Comment on NAC Drug Trial with Brisan and Parker by Dad

Dad — Sun, 17 Jan 2010 08:12:46 +0000

Hey Chris. Yes he is chewing on everything. If is not his shirt then it is whatever is closest. He is always needing to play with his mouth or figit with something.

Comment on NAC Drug Trial with Brisan and Parker by Chris Hempel

Chris Hempel — Sun, 17 Jan 2010 03:10:39 +0000

I noticed that Brisan is chewing in the video on a rubber wrist band — Addi and Cassi are chewing like crazy. Does he do this a lot?

Comment on Pictures from Christmas 2009 by ma

ma — Fri, 08 Jan 2010 16:13:13 +0000

hey guys. can’t wait to see you tomorrow . happy bday duncan and parker! love you and hope you are having fun and staying warm. love MA

Comment on Heading to Bethesda, MD to start the NAC Trial for NPC by Darla Sartain

Darla Sartain — Wed, 02 Dec 2009 17:59:27 +0000

My prayers and thoughts go with your family as you travel and also with the treatments. Hoping these treatments lead to the cure for your children. God Bless.

Comment on Guestbook by ma

ma — Thu, 17 Sep 2009 15:14:46 +0000

hey boys,
I will be there friday night late to spend the night with you all. Maybe sat morning we can do something special. I love all three of you.
Love, MA

Comment on Happy 5th Birthday Brisan! by Cate Walsh Vockley

Cate Walsh Vockley — Fri, 28 Aug 2009 16:33:33 +0000

Way to go Brisan…I hope you had a terrific day!

Cate

Comment on Happy 5th Birthday Brisan! by Susan Green

Susan Green — Fri, 28 Aug 2009 08:15:04 +0000

Happy Birthday Brisan!!! Hope you have a very happy day!
Lots of Love
Susan, Jim and Roy

Comment on Guestbook by ma

ma — Mon, 20 Jul 2009 17:21:11 +0000

Brisan and Parker,
I am so glad that I get to spend time with you all. You both have been laughing more and I have fun with you. our whole church prayed for you both for God’s guidance and love. Know that people love you. I love you, also. Maybe momma will let us go to the zoo and see all the animals. Marty and Alex might be there. that sounds fun. will see you soon.

Love, MA