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	<title>Brisan and Parker Stults - Fighting Niemann-Pick Type C - The Childhood Alzheimer&#039;s - Blog.BriParDun.com &#187; Your help is needed</title>
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		<title>Crop &amp; Shop Fundraiser &#124; Benefit For Brisan and Parker Stults &#124; Saturday, November 21, 2009</title>
		<link>http://www.blog.bripardun.com/2009/11/crop-shop-fundraiser-benefit-for-brisan-and-parker-stults-saturday-november-21-2009/</link>
		<comments>http://www.blog.bripardun.com/2009/11/crop-shop-fundraiser-benefit-for-brisan-and-parker-stults-saturday-november-21-2009/#comments</comments>
		<pubDate>Thu, 05 Nov 2009 02:22:29 +0000</pubDate>
		<dc:creator>Dad</dc:creator>
				<category><![CDATA[Brisan]]></category>
		<category><![CDATA[Fundraiser]]></category>
		<category><![CDATA[Jenn Stults]]></category>
		<category><![CDATA[Michael]]></category>
		<category><![CDATA[Michael Stults]]></category>
		<category><![CDATA[Mike & Jennifer]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Niemann-Pick Type C]]></category>
		<category><![CDATA[Parker]]></category>
		<category><![CDATA[Updates]]></category>
		<category><![CDATA[Your help is needed]]></category>
		<category><![CDATA[Brisan Stults]]></category>
		<category><![CDATA[Grain Valley]]></category>
		<category><![CDATA[Jennifer Stults]]></category>
		<category><![CDATA[MO]]></category>
		<category><![CDATA[Parker Stults]]></category>
		<category><![CDATA[Stacey Perry]]></category>

		<guid isPermaLink="false">http://www.blog.bripardun.com/?p=369</guid>
		<description><![CDATA[What is Niemann-Pick Type C? Here is something to put it into perspective. &#8220;Dementia is something usually associated with older people. However, children, teenagers and young adults can experience dementia as a result of a number of rare diseases and conditions. Niemann-Pick Disease Type C (NPC) is an example of one of these diseases, and [...]]]></description>
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		<slash:comments>0</slash:comments>
		</item>
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		<title>Strength of family endures despite nearly insurmountable odds</title>
		<link>http://www.blog.bripardun.com/2009/10/strength-of-family-endures-despite-nearly-insurmountable-odds/</link>
		<comments>http://www.blog.bripardun.com/2009/10/strength-of-family-endures-despite-nearly-insurmountable-odds/#comments</comments>
		<pubDate>Tue, 06 Oct 2009 21:32:39 +0000</pubDate>
		<dc:creator>Dad</dc:creator>
				<category><![CDATA[Brisan]]></category>
		<category><![CDATA[Fundraiser]]></category>
		<category><![CDATA[Jenn Stults]]></category>
		<category><![CDATA[Michael]]></category>
		<category><![CDATA[Michael Stults]]></category>
		<category><![CDATA[Mike & Jennifer]]></category>
		<category><![CDATA[Mom]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Niemann-Pick Type C]]></category>
		<category><![CDATA[Parker]]></category>
		<category><![CDATA[Your help is needed]]></category>
		<category><![CDATA[Brisan Stults]]></category>
		<category><![CDATA[Christopher Fischer]]></category>
		<category><![CDATA[Grain Valley]]></category>
		<category><![CDATA[Jennifer Stults]]></category>
		<category><![CDATA[MO]]></category>
		<category><![CDATA[Niemann-Pick Typ]]></category>
		<category><![CDATA[NP-C]]></category>
		<category><![CDATA[Parker Stults]]></category>
		<category><![CDATA[The Pointe - Grain Valley]]></category>
		<category><![CDATA[The Pointe Staff]]></category>

		<guid isPermaLink="false">http://www.blog.bripardun.com/?p=356</guid>
		<description><![CDATA[Strength of family endures despite nearly insurmountable odds
Two young brothers suffer from rare disease, sometimes called “Childhood Alzheimer’s”
By Christopher Fischer
The Pointe Staff
Published: Tuesday, October 6, 2009 10:04 AM CDT 
Enter their home, and you’ll see a young, middle class family that appears to be much like any other in Grain Valley. Three young, boisterous boys [...]]]></description>
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		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Budget cuts threaten young girl&#8217;s life-sustaining care</title>
		<link>http://www.blog.bripardun.com/2009/08/budget-cuts-threaten-young-girls-life-sustaining-care/</link>
		<comments>http://www.blog.bripardun.com/2009/08/budget-cuts-threaten-young-girls-life-sustaining-care/#comments</comments>
		<pubDate>Sat, 08 Aug 2009 16:06:09 +0000</pubDate>
		<dc:creator>Dad</dc:creator>
				<category><![CDATA[Brisan]]></category>
		<category><![CDATA[Jenn Stults]]></category>
		<category><![CDATA[Michael Stults]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Niemann-Pick Type C]]></category>
		<category><![CDATA[Parker]]></category>
		<category><![CDATA[Your help is needed]]></category>

		<guid isPermaLink="false">http://www.blog.bripardun.com/?p=303</guid>
		<description><![CDATA[This story aired on Tuesday!  I was out of town so I didn&#8217;t get to watch it. Hopefully you can see what these challenges lay ahead for Brisan and Parker. Please keep Jessica&#8217;s family and everyone affected by this disease in your prayers.
Embedded video from CNN Video
The story
Anthony and Lisa Leoni have little time [...]]]></description>
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		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>A mom&#8217;s quest: Saving her twin daughters&#8217; lives</title>
		<link>http://www.blog.bripardun.com/2009/06/a-moms-quest-saving-her-twin-daughters-lives/</link>
		<comments>http://www.blog.bripardun.com/2009/06/a-moms-quest-saving-her-twin-daughters-lives/#comments</comments>
		<pubDate>Mon, 29 Jun 2009 16:46:40 +0000</pubDate>
		<dc:creator>Dad</dc:creator>
				<category><![CDATA[Addi & Cassi Hempel]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Niemann-Pick Type C]]></category>
		<category><![CDATA[Your help is needed]]></category>

		<guid isPermaLink="false">http://www.blog.bripardun.com/?p=232</guid>
		<description><![CDATA[
Visit msnbc.com for Breaking News, World News, and News about the Economy


Addi &#038; Cassi Hempel
]]></description>
		<wfw:commentRss>http://www.blog.bripardun.com/2009/06/a-moms-quest-saving-her-twin-daughters-lives/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
		</item>
		<item>
		<title>Please watch Dateline Tonight! 6-28-09</title>
		<link>http://www.blog.bripardun.com/2009/06/please-watch-dateline-tonight-6-28-09/</link>
		<comments>http://www.blog.bripardun.com/2009/06/please-watch-dateline-tonight-6-28-09/#comments</comments>
		<pubDate>Sun, 28 Jun 2009 17:42:40 +0000</pubDate>
		<dc:creator>Dad</dc:creator>
				<category><![CDATA[Addi & Cassi Hempel]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Niemann-Pick Type C]]></category>
		<category><![CDATA[Your help is needed]]></category>

		<guid isPermaLink="false">http://www.blog.bripardun.com/?p=224</guid>
		<description><![CDATA[Tonight on Dateline, The Hempel family who have twin 5 year girls will be airing a story about their family and their battle with Niemann-Pick Type C.  The Hempel Family has really worked hard as like other families to promote awareness and to find a suitable treatment for this devastating disease. 
As you know [...]]]></description>
		<wfw:commentRss>http://www.blog.bripardun.com/2009/06/please-watch-dateline-tonight-6-28-09/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Doctors performed the world’s first Intracranial Stem Cell Transplant for NP-C patient</title>
		<link>http://www.blog.bripardun.com/2009/01/doctors-performed-the-world%e2%80%99s-first-intracranial-stem-cell-transplant-for-np-c-patient/</link>
		<comments>http://www.blog.bripardun.com/2009/01/doctors-performed-the-world%e2%80%99s-first-intracranial-stem-cell-transplant-for-np-c-patient/#comments</comments>
		<pubDate>Fri, 02 Jan 2009 15:21:49 +0000</pubDate>
		<dc:creator>Dad</dc:creator>
				<category><![CDATA[Your help is needed]]></category>

		<guid isPermaLink="false">http://fightnpc.wordpress.com/?p=30</guid>
		<description><![CDATA[Aaditya is a special young man!  His article about the ground breaking procedure  he endured was recently released.
Here is the link:  http://www.bangaloremirror.com/index.aspx?Page=article&#38;sectname=News%20-%20City&#38;sectid=10&#38;contentid=200901022009010201145514184f47eb6
]]></description>
		<wfw:commentRss>http://www.blog.bripardun.com/2009/01/doctors-performed-the-world%e2%80%99s-first-intracranial-stem-cell-transplant-for-np-c-patient/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Metro Family Tries to Cope With &#039;Childhood Alzheimers&#039;</title>
		<link>http://www.blog.bripardun.com/2008/12/metro-family-tries-to-cope-with-childhood-alzheimers/</link>
		<comments>http://www.blog.bripardun.com/2008/12/metro-family-tries-to-cope-with-childhood-alzheimers/#comments</comments>
		<pubDate>Wed, 31 Dec 2008 20:49:49 +0000</pubDate>
		<dc:creator>Dad</dc:creator>
				<category><![CDATA[Your help is needed]]></category>

		<guid isPermaLink="false">http://fightnpc.wordpress.com/?p=15</guid>
		<description><![CDATA[If you tell someone that your child suffers from "Niemann Pick Disease Type C," most people would have no idea what you're talking about.

But if you tell them that your child suffers from "Childhood Alzheimers," those people would begin to understand the seriousness of your child's condition.

Niemann Pick disease is a rare and fatal disease that robs a child of both their past and their future, and for one metro family the condition is a double tragedy.]]></description>
		<wfw:commentRss>http://www.blog.bripardun.com/2008/12/metro-family-tries-to-cope-with-childhood-alzheimers/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>DEMENTIA: TheScientist Magazine dives deaper into NP-C</title>
		<link>http://www.blog.bripardun.com/2008/12/dementia-thescientist-magazine-dives-deaper-into-npc/</link>
		<comments>http://www.blog.bripardun.com/2008/12/dementia-thescientist-magazine-dives-deaper-into-npc/#comments</comments>
		<pubDate>Wed, 31 Dec 2008 20:25:02 +0000</pubDate>
		<dc:creator>Dad</dc:creator>
				<category><![CDATA[Your help is needed]]></category>

		<guid isPermaLink="false">http://fightnpc.wordpress.com/?p=10</guid>
		<description><![CDATA[This is a great article.  Click on the picture to read the PDF.
]]></description>
		<wfw:commentRss>http://www.blog.bripardun.com/2008/12/dementia-thescientist-magazine-dives-deaper-into-npc/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Sometimes a name leaves you wondering&#8230;What is Niemann-Pick Type C?</title>
		<link>http://www.blog.bripardun.com/2008/12/sometimes-a-name-leaves-you-wonderingwhat-is-niemann-pick-type-c/</link>
		<comments>http://www.blog.bripardun.com/2008/12/sometimes-a-name-leaves-you-wonderingwhat-is-niemann-pick-type-c/#comments</comments>
		<pubDate>Wed, 31 Dec 2008 16:59:20 +0000</pubDate>
		<dc:creator>Dad</dc:creator>
				<category><![CDATA[Your help is needed]]></category>

		<guid isPermaLink="false">http://fightnpc.wordpress.com/?p=3</guid>
		<description><![CDATA[
As a society we are somewhat familiar with common diseases such as Cystic Fibrosis, Multiple Scleroses, and Muscular Dystrophy. However, a name like, &#8220;Niemann-Pick Type C disease&#8221; leaves you wondering.
 This genetic, neurodegenerative disorder strikes children through accumulation of cholesterol and other excess fats in the cells of the liver, spleen and brain.  When [...]]]></description>
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		<slash:comments>0</slash:comments>
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