• 14Feb

  Valentines Day Weekend

  Jenn Stults, Michael Stults, Mike & Jennifer No Comments

  Me and Jennifer had a chance to get some away time from the lil dudes this weekend. I entered into a contest with Reltionships360 at the beginning of the week. I wasn’t quite for sure if it would pan out but I am very glad it did!

  
  

  On Thursday I received the news that we had won! At first when I called Jennifer to tell her, she wasn’t too excited. Really the thought was who was going to watch the kids? Well we got that worked out!

  
  

  We received an overnight stay by the Marriot, 4 hour limousine ride by Extreme Limousine, dinner at McCormick & Schmicks on the Plaza, flowers & chocolates from Kamps Flowers, and most importantly time alone!

  
  

  All together we say thank you for everyone that made this happen and we are very thankful!

  

  Tags: Extreme Limousine, Jennifer Stults, Kamps Flowers, Marriot, McCormick and Schmicks, Michael G. Stults, Relationships360, Tiffany Williams

• 27Dec

  Pictures from Christmas 2009

  Brisan, Jenn Stults, Michael Stults, Mike & Jennifer, Parker 1 Comment

  Here are pictures from some of our Christmas with Brisan, Parker, Duncan and the whole family! Enjoy!

  

  Tags: Brisan Stults, Christmas 2009, Duncan Stults, Jennifer Stults, Michael G. Stults, Parker Stults

• 02Dec

  Heading to Bethesda, MD to start the NAC Trial for NPC

  Brisan, Michael Stults, Mike & Jennifer, News, Niemann-Pick Type C, Parker 1 Comment

  Tomorrow morning we set out on a journey across the country to start a new drug trial they call the Biomarker Validation for Niemann-Pick Disease, type C: Safety and Efficacy of N-Acetyl Cysteine at the National Institute of Health in Bethesda, MD. This clinical trial will hopefully lay the groundwork for future therapeutic trials. You can  read more about it here (I’ll spare you from me trying to explain it): http://www.nnpdf.org/NPCClinicalTrialOpportunity.html.

  
  

  Brisan and Parker also started on November 23rd weekly infusions of DDVAP which has been used for completely different reasons but they have found that it helps elevate your Von Willibrand Factor which contributes to helping your blood clot. As some of you may know they both have an issue with clotting with a underlying bleeding disorder that they have not been able to pinpoint exactly. The weekly infusions will hopefully allow them to clot faster therefore keeping the sanity in the house!

  As parents it is frustrating not only because your child doesn’t understand why you have to hold their nose “forever” but it always happens at the wrong times! Stay tuned about more info on the NAC trial and updates!
  Dad

  Tags: Biomarker Validation for Niemann-Pick Disease, Brisan, Jennifer, Michael Stults, N-Acetyl Cysteine, NAC Trial, Niemann-Pick Disease Type C, Parker, Stults, Type C

• 04Nov

  Crop & Shop Fundraiser | Benefit For Brisan and Parker Stults | Saturday, November 21, 2009

  Brisan, Fundraiser, Jenn Stults, Michael, Michael Stults, Mike & Jennifer, News, Niemann-Pick Type C, Parker, Updates, Your help is needed No Comments

  What is Niemann-Pick Type C? Here is something to put it into perspective. “Dementia is something usually associated with older people. However, children, teenagers and young adults can experience dementia as a result of a number of rare diseases and conditions. Niemann-Pick Disease Type C (NPC) is an example of one of these diseases, and one of its main symptoms is dementia.”

  Calling all scrapbookers! Do we have a treat for you this month!

  Crop & Shop Fundraiser will be benefiting the Stults Family of Grain Valley, MO! This will be a fun filled day of scrapbooking, socializing, shopping and good times! There will be door prizes and lost of fun! Don’t miss out!  Register before November 17th and receive a complimentary goody-bag!

  Saturday November 21, 2009

  10am-5pm

  Faith United Methodist Church

  1950 Eagles Parkway Grain Valley, MO 64029

  Driving Directions Here

  Contact Stacey Perry @ 816-847-6856 or email mands_perry@sbcglobal.net

  
  

  

  Tags: Brisan Stults, Fundraiser, Grain Valley, Jennifer Stults, Michael Stults, MO, Niemann-Pick Type C, Parker Stults, Stacey Perry

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