Brisan and Parker Stults – Fighting Niemann-Pick Type C – The Childhood Alzheimer's

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Did you forget something…

Dementia is something that is usually associated with older people. However, children, teenagers and young adults can experience dementia as a result of a number of rare diseases and conditions. Niemann-Pick Disease Type C (NPC) is an example of one of these diseases, and one of its main symptoms is dementia. (Hinton et al, 2005)

Meet Brisan & Parker

Bath Time

Put in Perspective

What is NP-C?

Dr. Marc Patterson on NP-C

More Information

Brisan & Parker's Website -BriParDun

Brisan & Parker's Blog

Niemann-Pick Children's Fund, Inc.

National Niemann Pick Disease Foundation

Ara Parseghian Medical Research Foundation

Hide and Seek Foundation

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Brisan & Parker

NPCFund

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World Rare Disease Day 2012 is coming up on February 29th. Consider these staggering statistics. Each year, 139 BILLION U.S. dollars are invested in medical research — much of it from tax payers Each year, 800,000 papers are published in medical journals by scientists Each year on average, ONLY 21 new drugs are approved by […]
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My life grows more surreal by the day. Four years ago, I was told that my eight year old identical twins have a fatal genetic cholesterol disease called Niemann Pick Type C (the “Childhood Alzheimer’s”) and they would likely not live to see their 10th birthday. Now I have learned from top virus scientists that […]

Web Of Hope

Looking For A Page?

25Jun

Parents live knowing rare disease will take daughter from them

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http://www.mercedsunstar.com/220/story/918501.html
24Jun

Pictures from Disney World

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We wanted to share some pictures with everyone.

Learn More About NPC

Where we stayed: Give Kids The World
23Jun

Meet Brisan, Parker, and Duncan (Wash DC Jan 09)

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We were waiting at our terminal to board our plane back to KC. We were at the National Institute of Health participating in a biochemcial marker study Jan 5-9, 2009.
18Jun

Back Home – Thank You Make-A-Wish Foundation!

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We made it back from Disney World all in one piece! We want to say Thank you to the Make-A-Wish Foundation for giving this special opportunity to us to make memories with our family!

Brisan and Parker had a lot of fun for what they were able to enjoy of the time there!

I will have some pictures up soon and hopefully some video.

Thank you!