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Dementia is something that is usually associated with older people. However, children, teenagers and young adults can experience dementia as a result of a number of rare diseases and conditions. Niemann-Pick Disease Type C (NPC) is an example of one of these diseases, and one of its main symptoms is dementia. (Hinton et al, 2005)

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Dr. Marc Patterson on NP-C

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Niemann-Pick Children's Fund, Inc.

National Niemann Pick Disease Foundation

Ara Parseghian Medical Research Foundation

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Vote 4 Hope at Pepsi Refresh To Find Cures for Rare Skin Conditions like Epidermolysis Bullosa, Harlequin Ichthyosis, Xeroderma-Pigmentosum
During the Vote4Hope Pepsi Refresh Rare Disease Campaign, I am making video postings throughout September to raise awareness for all rare diseases, not simply the horrific disease called Niemann Pick Type C that my six year old identical twins suffer from. Today’s videos are some of the most heartwrenching videos I have ever watched. The videos [...] […]
Pepsi Refresh Links For Vote4Hope, Vote 4 Hope Rare Disease Campaign
If you are looking for information on the Pepsi Refresh Vote4Hope Rare Disease campaign being run by the Children’s Rare Disease Network and Global Genes Project, here are the links and information you need to help fund hope for sick kids. Click here for Pepsi Refresh Site Link – actual URL if you need it is: [...] […]

Web Of Hope

New non-drug fix for HIV?
The Scientist Magazine By Alison McCook 30th June 2009 Researchers are slowly establishing a connection between an extremely rare genetic disease and HIV — and homing in on a safe, non-prescription compound that could treat both. Recently, James Hildreth at the Meharry Medical College School of Medicine in Nashville, Tenn., and his colleagues found that cell […]
Wacker Chemie Expands US Based Cyclodextrin Facility To Meet Increase In Worldwide Demand For Sugar Molecule
Wacker Chemie, the Munich-based chemical company, announced that is has expanded its US based cyclodextrin facility in Eddyville, Iowa. According the the press release issued by Wacker, the new cyclodextrin facility increases the company’s capacity for alpha (α) and beta (β) cyclodextrins by 50 percent and doubles its capacity for gamma (γ) cyclodextrins. I […]

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06Nov

Duncans favorite video

Duncan, Fun

Elmo had four ducks….quack quack….

He absolutely loves it! He gets a big grin on his face and sways his head back and forth. Little man has some rhythm! Just wanted to share some fun stuff.

Posted by Dad @ 6:06 pm

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