This story aired on Tuesday! I was out of town so I didn’t get to watch it. Hopefully you can see what these challenges lay ahead for Brisan and Parker. Please keep Jessica’s family and everyone affected by this disease in your prayers.
The story
Anthony and Lisa Leoni have little time to worry about whether California’s budget crisis will affect their daughter’s life-sustaining care.
A steady stream of nurses, caregivers and therapists visit 12-year-old Jessica at home around the clock. Jessica suffers from a rare and fatal disease called Niemann Pick Type C. A cholesterol imbalance destroys healthy cells in the liver, spleen and brain.
Although Jessica led a relatively normal life before the illness worsened, her mother always knew the disease would eventually take over. Read full article »
