Brisan and Parker Stults – Fighting Niemann-Pick Type C – The Childhood Alzheimer's

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Did you forget something…

Dementia is something that is usually associated with older people. However, children, teenagers and young adults can experience dementia as a result of a number of rare diseases and conditions. Niemann-Pick Disease Type C (NPC) is an example of one of these diseases, and one of its main symptoms is dementia. (Hinton et al, 2005)

Meet Brisan & Parker

Bath Time

Put in Perspective

What is NP-C?

Dr. Marc Patterson on NP-C

More Information

Brisan & Parker's Website -BriParDun

Brisan & Parker's Blog

Niemann-Pick Children's Fund, Inc.

National Niemann Pick Disease Foundation

Ara Parseghian Medical Research Foundation

Hide and Seek Foundation

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Looking For A Page?

27Aug

Congressman Mike Rogers’ opening statement on Health Care reform in Washington D.C.

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Must See.
27Aug

Happy 5th Birthday Brisan!

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Today is Brisan’s 5th Birthday! Happy Birthday Brisan!!!!!!
21Aug

Some Pictures of the Lil Dudes!

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Pre Duncan haircut and for the safety of all man kind before blast off.

I wonder which one actual ate their food? Umm I wonder...

Yeah one of them look like they are up to something?

I think they look happy????
08Aug

Budget cuts threaten young girl’s life-sustaining care

Brisan, Jenn Stults, Michael Stults, News, Niemann-Pick Type C, Parker, Your help is needed No Comments

This story aired on Tuesday! I was out of town so I didn’t get to watch it. Hopefully you can see what these challenges lay ahead for Brisan and Parker. Please keep Jessica’s family and everyone affected by this disease in your prayers.

The story

Anthony and Lisa Leoni have little time to worry about whether California’s budget crisis will affect their daughter’s life-sustaining care.

A steady stream of nurses, caregivers and therapists visit 12-year-old Jessica at home around the clock. Jessica suffers from a rare and fatal disease called Niemann Pick Type C. A cholesterol imbalance destroys healthy cells in the liver, spleen and brain.

Although Jessica led a relatively normal life before the illness worsened, her mother always knew the disease would eventually take over. Read full article »