Brisan and Parker Stults – Fighting Niemann-Pick Type C – The Childhood Alzheimer's – Blog.BriParDun.com » Blog Archive

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Dementia is something that is usually associated with older people. However, children, teenagers and young adults can experience dementia as a result of a number of rare diseases and conditions. Niemann-Pick Disease Type C (NPC) is an example of one of these diseases, and one of its main symptoms is dementia. (Hinton et al, 2005)

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Niemann-Pick Children's Fund, Inc.

National Niemann Pick Disease Foundation

Ara Parseghian Medical Research Foundation

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Addi & Cassi Hempel

Rare Disease Day 2012 – Spread This Call To Action To Make A Difference!
World Rare Disease Day 2012 is coming up on February 29th. Consider these staggering statistics. Each year, 139 BILLION U.S. dollars are invested in medical research — much of it from tax payers Each year, 800,000 papers are published in medical journals by scientists Each year on average, ONLY 21 new drugs are approved by […]
Meet The Children Who Are Resistant To Contracting Ebola, HIV-AIDS
My life grows more surreal by the day. Four years ago, I was told that my eight year old identical twins have a fatal genetic cholesterol disease called Niemann Pick Type C (the “Childhood Alzheimer’s”) and they would likely not live to see their 10th birthday. Now I have learned from top virus scientists that […]

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28Jun

Please watch Dateline Tonight! 6-28-09

Addi & Cassi Hempel, News, Niemann-Pick Type C, Your help is needed

Tonight on Dateline, The Hempel family who have twin 5 year girls will be airing a story about their family and their battle with Niemann-Pick Type C. The Hempel Family has really worked hard as like other families to promote awareness and to find a suitable treatment for this devastating disease.

As you know depending upon air time and what news happens through out the day, air times could vary. This will be a great informational session and you can see first hand a family experiencing this disease.

Hempel Twins

Thank you very much!

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Posted by Dad @ 1:42 pm