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29Jun
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28Jun
Tonight on Dateline, The Hempel family who have twin 5 year girls will be airing a story about their family and their battle with Niemann-Pick Type C. The Hempel Family has really worked hard as like other families to promote awareness and to find a suitable treatment for this devastating disease.
As you know depending upon air time and what news happens through out the day, air times could vary. This will be a great informational session and you can see first hand a family experiencing this disease.
Thank you very much!
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25Jun
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24Jun
We wanted to share some pictures with everyone.
Where we stayed: Give Kids The World
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23Jun
We were waiting at our terminal to board our plane back to KC. We were at the National Institute of Health participating in a biochemcial marker study Jan 5-9, 2009.
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18Jun
We made it back from Disney World all in one piece! We want to say Thank you to the Make-A-Wish Foundation for giving this special opportunity to us to make memories with our family!
Brisan and Parker had a lot of fun for what they were able to enjoy of the time there!
I will have some pictures up soon and hopefully some video.
Thank you!









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