Brisan and Parker Stults – Fighting Niemann-Pick Type C – The Childhood Alzheimer's – Blog.BriParDun.com » Blog Archive » (Aug 2007) One-Year Results On The Use Of Miglustat (Zavesca®) In Niemann-Pick Type C Disease Published In "The Lancet Neurology"

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Dementia is something that is usually associated with older people. However, children, teenagers and young adults can experience dementia as a result of a number of rare diseases and conditions. Niemann-Pick Disease Type C (NPC) is an example of one of these diseases, and one of its main symptoms is dementia. (Hinton et al, 2005)

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(Aug 2007) One-Year Results On The Use Of Miglustat (Zavesca®) In Niemann-Pick Type C Disease Published In "The Lancet Neurology"

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(Aug. 2007) One-Year Results On The Use Of Miglustat (Zavesca®)

Information about the one year study on Miglustat (Aug. 2007) that Brisan and Parker both take and other NPC patients take (if insurance will pay for it. 80k per year for one child!!) . This drug really helps buy some time. That time could be less for some, none for others and a little more for others. Zavesca is a step in the right direciton.

Posted by Dad @ 5:15 pm